We had a great time at the Nordic Rare Disease Summit 2023 last week, where important topics such as early diagnosis, patient empowerment, access to innovative treatments and EU legislation were discussed. It was a valuable opportunity to listen to insightful discussions about rare diseases in a multi-stakeholder setting, to connect with like-minded professionals and to hear the powerful stories of those who live with a rare disease. We are looking forward to continuing the conversations and participating in the important work aiming to improve the lives of patients and their loved ones!