Recently, the 2023 ratings of Swedish Quality of care registers were made official and there are many top-rated registries within fields such as oncology, cardiovascular disease, infectious diseases, CNS and musculoskeletal diseases to name a few.
The Swedish disease-specific Quality of care registers, led by healthcare professionals and patient representatives, constitute a globally unique data asset.
With detailed patient-level clinical information related to patient characteristics, medical interventions, and outcomes (including patient-reported outcome measures – PROMs) they provide an invaluable complement to the national administrative registers that cover the entire Swedish population of 10 million inhabitants.
Every year, each of the more than 100 disease-specific registries receive funding partially based on a 4-level certification system which considers for example:
· Coverage (highest rating requires 85% coverage of the relevant patient population)
· Data quality and completeness
· Active promotion of use of the register both for clinical improvement and for research purposes
· Inclusion of the PROMs
· Patient involvement and reporting of quality indicators to patients and the general public
Quantify Research has collaborated with many of the Quality of care registers and have co-authored numerous scientific publications based on real-world studies using their data.
Want to know more about how you can use Quality of care register data to fill your evidence gaps? Reach out!
